\u00cen fiecare an, pe data de 26 martie, se celebreaz\u0103 #PurpleDay, Ziua Mondial\u0103 de Con\u0219tientizare a Epilepsiei.’Tragem un semnal de alarm\u0103 cu privire la criza grav\u0103 de medicamente esen\u021biale pentru tratarea acestei afec\u021biuni, pun\u00e2nd \u00een pericol via\u021ba \u0219i stabilitatea pacien\u021bilor, \u00een special a copiilor. Lipsa din ultima perioad\u0103 a tratamentelor necesare cre\u0219te riscul de crize necontrolate, complica\u021bii severe \u0219i afecteaz\u0103 profund calitatea vie\u021bii celor diagnostica\u021bi. Facem un apel urgent c\u0103tre autorit\u0103\u021bi \u0219i distribuitori s\u0103 ia m\u0103suri imediate pentru asigurarea continuit\u0103\u021bii tratamentului, iar presei s\u0103 sprijine aceast\u0103 cauz\u0103, inform\u00e2nd opinia public\u0103 despre impactul dramatic al acestei situa\u021bii asupra pacien\u021bilor \u0219i familiilor lor’, a declarat Ileana \u0218tefan, directorul executiv al Asocia\u021biei Pacien\u021bilor cu Epilepsie din Rom\u00e2nia.Potrivit medicului specialist Andrei D\u0103neasa, metodele de diagnostic \u0219i tratament au evoluat semnificativ \u00een acest domeniu, \u00eens\u0103 pacien\u021bii se confrunt\u0103 ‘constant’ cu problema accesului la tratamente inovative, dar mai ales a lipsei de pe pia\u021b\u0103 a tratamentelor care \u0219i-au dovedit eficien\u021ba.Ioana M\u00eendru\u021b\u0103, medic epileptolog la Spitalul Universitar de Urgen\u021b\u0103 Bucure\u0219ti, subliniaz\u0103 la r\u00e2ndul ei importan\u021ba colabor\u0103rii str\u00e2nse \u00eentre pacient \u0219i medic \u00een procesul de diagnosticare a epilepsiei.’Provoc\u0103rile emo\u021bionale resim\u021bite de pacien\u021bi \u0219i familiile lor sunt adesea subestimate, dar au un impact profund asupra calit\u0103\u021bii vie\u021bii. Este esen\u021bial ca aceste familii s\u0103 aib\u0103 acces la resurse adecvate, fie c\u0103 este vorba despre grupuri de sprijin, consiliere psihologic\u0103 sau activit\u0103\u021bi care s\u0103 le permit\u0103 s\u0103 \u00ee\u0219i exprime emo\u021biile \u0219i s\u0103 \u00eemp\u0103rt\u0103\u0219easc\u0103 experien\u021bele. Interven\u021biile timpurii \u0219i suportul psihologic pot ajuta at\u00e2t copiii, c\u00e2t \u0219i familiile s\u0103 dezvolte strategii de coping s\u0103n\u0103toase, s\u0103 duc\u0103 la o \u00eembun\u0103t\u0103\u021bire a comunic\u0103rii \u0219i s\u0103 construiasc\u0103 rela\u021bii mai puternice \u00een fa\u021ba adversit\u0103\u021bilor’, afirm\u0103 medicul Monica Bolocan.ASPERO va organiza, miercuri, un eveniment online – ‘Pacien\u021bii \u00eentreab\u0103, speciali\u0219tii epileptologi r\u0103spund’ – la care vor participa medici neurologi, speciali\u0219ti, at\u00e2t pentru adul\u021bi, c\u00e2t \u0219i pediatri.<\/p>","protected":false},"excerpt":{"rendered":"
\u00cen fiecare an, pe data de 26 martie, se celebreaz\u0103 #PurpleDay, Ziua Mondial\u0103 de Con\u0219tientizare…<\/p>\n","protected":false},"author":0,"featured_media":42443,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-42442","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actual"],"_links":{"self":[{"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/posts\/42442","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/types\/post"}],"replies":[{"embeddable":true,"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/comments?post=42442"}],"version-history":[{"count":0,"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/posts\/42442\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/media\/42443"}],"wp:attachment":[{"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/media?parent=42442"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/categories?post=42442"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/247stiri.ro\/index.php\/wp-json\/wp\/v2\/tags?post=42442"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}